We strive to provide you with a high quality community experience. Sorry! I have gone crazy the past 4-5 weeks but still continuing. thank you. They showed me his heart, and his kidney, and, you know, his spine and his legs and all that sort of thing. Many conditions can be detected at the 20 week scan, but they may not need any treatment or may not cause any problems for your baby. In fact, 1 in 20 pregnant women will receive a diagnosis of a major birth defect at their 20 week scan. And I looked at the screen and I thought, 'Oh gosh, what's wrong with his hands?' This can be a difficult time, and it is important to have people who you can lean on for support. Sonographers undoubtedly face a difficult dilemma, given different people's preferences and needs for information. However, it is important to remember that many birth defects can be treated successfully if they are detected early. Some fetal development problems arent serious and wont need much, if any, treatment. And you know how you put the money on the machine when you go in, because you have to pay for them. Youd also have the opportunity to meet with genetic specialists. And if it weren't for her being thorough . Hang on a minute. Best of luck. You know, 'Little bugger, I wish he'd move his hand' says the sonographer. The scan takes about 30 minutes. pregnancy, your doctor might recommend extra ultrasounds if there are medical concerns about the pregnancy, there have been problems with a previous pregnancy, theres uncertainty about the pregnancy dates or youre expecting twins or multiples. 'Babies lay in funny positions, he's turned over -- he's not in a good position'. Neurobehavioral disorders are a group of conditions associated with brain impairments, injuries, or diseases such as dementia or multiple sclerosis. We left for home feeling completely numb. How common is it to receive bad news at the 20 week scan? Im available if you have any questions and i will try to answer to the best of my ability. The consensus was that our baby would not survive long past birth and if by some miracle he did survive that he would spend the rest of his life struggling, probably never even learning to walk or talk. I went back the next day for amniocentesis to try to find out if there's something genetic causing these anomalies. A counsellor or therapist can offer support and guidance. I take that as a good You know, can I? If you do get bad news, its important to remember that you are not alone. Mumsnet carries some affiliate marketing links, so if you buy something through our posts, we may get a small share of the sale (more details here), tbh, they never give you good news at scans. i didnt work in the ICU specifically caring for those babes so im not sure! The purpose of the scan is: to confirm that there is a heartbeat. So for now we are just hoping its going to be okay but my heart pushes me in all directions. And then he came back again and he said, 'Oh, and I can't see it's kidneys, and I can't see it's bladder. How's the baby going to work if this key element is completely collapsed?'. . I am sorry to hear your news. It was quite sort of While shes not a normal healthy kid shes very normal. But this week is so much worse. My newphew had it and unfortunately passed away two years ago after being born. checks the position of the placenta. If youre worried about what the 20 week scan may reveal, its important to speak to your doctor or midwife. If you are worried about the 20 week scan, it may help to talk to your GP or midwife beforehand. If you do, in fact, receive news that your growing baby has some abnormalities, the first thing you need to do is take a deep breath. Thats because most birth defects are caused by problems with the development of the fetus during this time. WebThe 20-week ultrasound scan is one of the routine tests in pregnancy. This scan often happens at around 20 weeks in pregnancy, but it can happen What to Expect supports Group Black and its mission to increase greater diversity in media voices and media ownership. CDH came as a surprise at almost 33 weeks. Its a detailed ultrasound scan and its offered to all women between 18 and 21 weeks of pregnancy. She said she'd get the consultant to have a chat with us and refer us then to a more detailed scan at another fetal unit. And I thought at that stage my husband came over to me and I just burst into tears, I mean I was just having hysterics, absolute hysterics. But they were explained to us very well, weren't they, in sort of fairly simple terms? Very occasionally,parents were worried beforehand, including one woman who was worried but the news still came as a shock. Second, you should reach out to friends and family for support. I have heard it called both. Theyll contact you to let you know the results. So I was thinking, 'Umm, maybe I will, maybe I won't'. Parents often picked up that staff had spotted something unusual before anyone told them. Will the baby be healthy? into another room, and the scanner that she was using was a similar level to the one that we'd had for the nuchal fold, and it was, you know, extremely high-tech. Shes such a light in our lives and we love her just the way she is. The vast majority of babies are healthy and do not have any major problems at the 20 week scan. be, he cant be that poorly.. With my last pregnancy I had a similar experience. And it's sort of like they passed, just passed that assumption onto us as well, that we wouldn't be interested in it as a baby either. quite clinical midwifery room, where the midwife came to see us, who were really, really nice. Because when I went to the toilet and came back and she said, 'I've got to stop now, I've got to tell you this' and I were just so shocked then. thank you I have been crying non-stop since I heard the news. But there is a small chance that something could be found at the scan. Please select a reason for escalating this post to the WTE moderators: Connect with our community members by starting a discussion. We are so torn on what to do and it's the worst situation to be in. Use of this site is subject to our terms of use and privacy policy. I have chosen to endure all that pain and suffering so that he doesn't have to. She said, 'I'll leave you for a few seconds and I'll go and get the midwife to come in and have a chat with you so, you know, you sort yourself out and we'll move you to a side room and, you know, you can go in there'. The lady that scanned me first of all at She saw another sonographer who was more And I thought, 'My God, we're going to have a baby with funny hands.' No one wants to hear that their baby has a problem, but unfortunately sometimes the 20 week scan can reveal issues. Some parents want absolutely everything done and thats okay too. Of course, these statistics can be worrying for parents-to-be. Parents get a chance to emotionally adapt to news and plan. No, having a 20-week ultrasound is safe. She will be 4 next week and lives with a pacemaker. BabyCenter This image shows a baby's face and hands at 20 weeks, and gives you an idea of what youll be able to see at this scan. A little smaller than some kids and wont be an athlete but is such a joyful kid and loves life (and the moon, he really loves the moon). Can abnormalities develop after 20 weeks? Last reviewed July 2017. And da, da, da. If that's the case he could be born with other defects and/or severe disabilities. And then she finished and she turned the screen - we couldn't see the screen, so it was again the same, that she was looking at the screen and I was sitting sort of with my head behind the screen. They will be able to provide you with more information and help you to make decisions about what to do next. And then turned the screen towards me and he showed me the baby's hands, and they were in a And I would like to thank her and I can't remember her name but I would like to thank her very much, because if she hadn't have pointed these things out in the first place, we'd have never have got to [specialist hospital], we'd have never had the amnio, and we would have never have known until the day he was born. The week that followed was an agonising wait. I mean, they're doing it for a reason and the reason is, the negative reason rather than the positive one, but I just didn't, neither of us thought that. looks at A couple whose baby was later confirmed to have a serious chromosomal condition (Patau's syndrome) really valued the sonographer's honesty and kindness, and that she called the baby 'he', not 'it'. And I may not get a second chance at having a baby. Sending prayer your way,Hugs mama. Low risk NIPT, no bleeding, nothing bad at all. through this book. Oh well, sometimes that does, you know, that can happen,' because babies at - I can't remember what, what stage in their development - but start to drink amniotic fluid, so you can see that in their stomach and you can see it in their kidneys, and he said - and their bladder - and he said, 'Well, we'll And so I went in, and that's when I found out. Im so sorry you got bad news and are trying to cope with this. So she had done everything that she was meant to do correctly and double-checking and making 100 per cent sure that, 'Yes, that was the problem'. The scan is also a good opportunity to check how the baby is growing. But you will get to a point when you will be okay!! anywhere between 18 and 20 weeks. juan holds ________ power. Check the amniotic fluid levels Im really struggling. Well, hang on a minute, I'll be back in a minute,' and he left us and went out the Although omphalocele is usually a survivable condition, her water broke at 30 weeks and they were unable to save the baby, who died a few hours after birth. You know, at, at the start it was, 'I'm a bit concerned. 'You can come back another day he's in a better position, I can get some better pictures for you'. This educational content is not medical or diagnostic advice. You know, 'Little bugger, I wish he'd move his hand' says the sonographer. I will keep you posted and will update once the baby is here. My daughter is another thing that keeps me going. And how far had they talked to you during that first scan? and the kids can live a totally normal life and you would never know! And she did the right thing by bringing us back and sending us for walks and, and To comment on this thread you need to create a Mumsnet account. other problems though'. It was terrifying, but you may feel more assured once you've met your consultants and surgeons. So, well, I don't know, a bit of reassuring chat and perhaps a quick scan to say, 'Yeah, here's the baby. Vscode No server install found in WSL, needs x64. Anencephaly: This is a condition where part of the brain does not develop properly. spine's all okay; no spina bifida, okay; brain lobes are there; no hydrocephalus'. Oh well, there's probably nothing to worry about. Oh, actually I'm wrong'. People understood how difficult it must be for staff communicating bad news, and why they are sometimes silent while they concentrate, but silence still makes people worry. And she was very sensitive in the fact, the way she told us. The sonographer explained she would be silent at the 20-week . Praying for you and your family as you navigate this difficult journey. And my husband was crying, and we just didn't know, we didn't know what was going on. Can you tell me what you're seeing?' And she was very honest and said, 'Absolutely not, but it could be either a), it could either be [reading from notes], there's a possibility it was oesophageal stenosis or tracheo-oesophageal fistula', which are two conditions which mean that the baby can't swallow properly. This can be a great way to share your experiences and connect with other parents who understand what youre going through. DS had 2 soft markers: talipes (club foot) and 'echogenic locii' somewhere - heart I think. ', And I remember thinking, 'They've made a mistake, this can't be right. 2. scan in the woman's first pregnancy. At the 20-week scan, the sonographer seemed bored. So, yeah, so she wasn't scanning for that long and I didn't feel that she was scanning, it didn't feel like that long. SO much upset and needless angst has been caused by 'soft markers' found at scans. And she did the right thing by bringing us back and sending us for walks and, and What are the seven common characteristics of risk? But he absolutely deserves his life and is the sweetest happiest little boy. She will probably be a May baby now Find advice, support and good company (and some stuff just for fun). and I think the level of care there is very high and I feel lucky we're in that hospital. Shes thriving. And it was the first time that somebody had kind of referred to the baby in a sort of a soft way. She felt the bad news was then communicated to her honestly and sensitively, and was based tests in pregnancy. After the scan, you will be given a report of the findings. And she asked us if we wanted some phot-, in fact no, they didn't ask us if we wanted photographs, actually. This is such a devastating blow. The 20 week scan is an ultrasound scan that is routinely offered to pregnant women in England, Wales and Scotland. I'm a constant feedback person. There scanning process' and, you know, obviously didn't say that, how long they would be because obviously, you know, you can never tell because the baby could be lying the wrong way or - and we knew that from the first scan, because obviously the baby was lying the wrong way and they had to do an internal scan. We were really hoping the CDH could be fixed (which it could, had that been all they'd found). about the types of scan offered and what they are looking for (see 'Resources' section). But there is always a risk. While that sounds very overwhelming he actually is great with it and his older brothers even help him when he has trouble. Its unfortunately quite common. And completely devastated. Insensitive communication in her 20-week scan made her panic. He's in position'. A Group Leader is a What to Expect community member who has been selected by our staff to help maintain a positive, supportive tone within a group. 2005-2023Everyday Health, Inc., a Ziff Davis company. They are pretty certain he has some kind of serious genetic defect or syndrome causing all these anomalies, and likely many more that can't be detected prior to birth. The views expressed in community are solely the opinions of participants, and do not reflect those of What to Expect. But some are I really cannot imagine anything worse, except perhaps continuing the pregnancy only to give birth to a baby who will only ever know suffering and pain and who will never make it out of the NICU. I will go and get the consultant and the midwife to come and have a chat with you and explain it in more detail'. stuff to do now', I think, I tend to feel that that would be important, and a best way of doing it, so you get a little bit of initial reassurance that, 'Yeah, so far everything's OK, but I've got my job to do now and, you know, I'm going to need to concentrate on that.'. She was making me like go from, I had to, I was You're supposed to hear it but not interrupt and wait until they've finished deciding amongst themselves what they've decided and then ask, you know. But as it was she did take too long before she said something, and the tears started falling from my eyes because I thought, 'It's going wrong'. They spent a lot of time in and out of hospitals especially in first year. And I felt that all the rolling around and being tilted back and everything like that was due to the, her trying to doubly make sure that yes, she was 100 per cent - and she was taking a lot of pictures. But whatever the outcome, remember that you are not alone. The 20 week scan is a key moment in every pregnancy. -anencephaly (a condition where parts of the brain and skull are missing). What is the most common neurobehavioral disorder? He does have continence issues though. almost like he was, it was irrelevant that he was there. Expectant parents often worry about what the 20-week scan will reveal. The purpose of the 20-week scan is to: But its important to remember that most babies will be fine. Here are some tips on how to cope with the news and get the support you need. I sat in the waiting room for 2 to 3 hours, I think I must have been the very last one to be called. friendly and jokey. And if anything is found at the scan, it doesnt necessarily mean that there is anything wrong with your baby. I got bad news at the 20 week scan and it was quite serious (baby was healthy but umbilical cord wasnt so had 5% chance of surviving labour) but with very Would kaiser reconsider? The 20 week ultrasound, also known as the anatomy scan, is when a sonographer uses an ultrasound machine to: Check for physical abnormalities in baby Check mamas uterus, fluid levels, and placenta Determine babys sex Though its referred to as the 20 week ultrasound, most women have the exam some time between 18 and WebHi ladies- I had my 20 week scan yesterday and everything looks good (which I am thankful for) except for baby's weight. You know, maybe that was me sort of reading between the lines, but I felt no pressure from them to We chose to carry on - she made it to 38 weeks, had heart surgery at 5 months old. Was just speaking to a colleague at work about buying my pram this week and she said 'why are you buying so early? There is a problem with information submitted for this request. Can you see facial deformities in ultrasound? Group Black's collective includes Essence, The Shade Room and Naturally Curly. There are no significant risks associated with ultrasounds, though medical guidelines caution against unnecessary exposure to ultrasound which is why your practitioner will schedule only a handful of them throughout your pregnancy. Getting bad news during an ultrasound can be one of the most devastating experiences in a parent's world. It can often be an isolating time, and can be scary and frustrating waiting for further results or tests. Was she pointing, saying, you know, 'I can see a problem and I'm investigating further', or? (Of course some parents might not wish to know the baby's gender, and staff should check this first). nice situation having to say to someone 'You think your pregnancy is completely normal. How have you been coping with your grief of losing the possibility of having a healthy baby? And that was co-incidence. It's wriggling about. Making things more difficult is the fact that I will be 40 in September. If you feel a message or content violates these standards and would like to request its removal please submit the following information and our moderating team will respond shortly. select one: Which set of characteristics will produce the smallest value for the estimated standard error? She didn't say, 'Your baby is not going to live.' After about 13 weeks, miscarriages are uncommon. Sometimes the 20-week scan picks up development problems, health conditions or other complications. Why are these elements called the noble gases What is the common characteristic. Some services have 3D, 4D or even 5D ultrasound scanners, but these scans often cost extra. I didn't see my actual doctor but the doctor who reviewed my results wants me to do a second scan in 8 weeks. signs of serious disability. miscarriage. Though my experience isnt exact and the diagnosis are different, maybe I can offer you some hope. -spina bifida (a condition where the spinal cord doesnt develop properly) Her daughter is home and doing well and is about18 months I believe. The 20 week scan is a MEDICAL EXAMINATION and not just a party/opportunity to see your baby. But what happens if the news isnt good? I am just clinging onto some positive things that my doctor tells me. Sending you much love . They werent sure she would survive until birth and offered termination. Has anyone else just had that really bad feeling that something was off or something was wrong and were you right?Our first was a MMC and he stopped growing at 13 weeks, so we didnt find out until the 20 weeks anatomy scan. Baby does have a genetic variant on one of the genes that causes Kabuki, inherited from my husband but since my husband is fine, they think it should be okay. And my husband stood sort of in the corner of the room and I think he could see the screen but I mean there wasn't really any facility for him to sit near me or, you know, be able to - it was when they got to the head they sort of were, a bit sort of like, 'Oh come and' - because the other one was sort of writing things down, you know, while one of them did the scan, and then we they got to his head, you know, they were sort of like, 'Look at' - you know 'Ooh, look at this', you know - only like [whispering] 'Ooh, look at this' - and to each other, but not to us. The 20 week scan is also known as the anatomy scan or the fetal survey. on a really thorough examination, but it took her quite a long time to grasp how serious the situation was. I was BREEZING through my pregnancy, no complications or concerns, NIPT came back low risk, great labs, I'm in excellent health. As I say they asked again quite a lot of detail about dates, and were we really sure, and that sort of thing. The short answer is that its very unlikely. Seeing your baby on a screen can be really I feel completely blind-sided. But I guess a lot of them wouldn't have thought through how it seems from the other side if somebody is talking and then all of a sudden they go really quiet. My son has lissencephaly. Most pregnant women are referred for their first routine (or booking or dating) ultrasound scan somewhere between 11 and 14 weeks of pregnancy. It got to the 21 or 22 week stage where they do the last scan and he was still in the breech position then, so again, they couldn't see his heart and said, 'It's up to you, if you want to you can come back one more time.' Last week was the worst week of my life as we struggled to come to terms with the fact that we would never get to meet the normal healthy happy baby boy we'd been dreaming of. bad news at 20 week scan :(: I had my scan this morning and discovered by little girl has gastroschisis, which is where the bowel sits outside the abdominal wall. The 20-week pregnancy scan is the most important prenatal screening test as it can both screen for abnormalities and, with detailed analysis from a specialist, offer diagnosis. Father'It was very much, you know, even at that stage, it was very much, 'He's doing this' not, 'It's doing it'. They will be able to talk through your concerns and help you to understand more about what the scan involves and what it can show. I had mine on Tuesday and was told my baby boy has a massive, life-threatening birth defect called a Congenital Diaphragmatic Hernia, CDH. Next most likely is that baby doesn't co-operate and they can't see some parts of anatomy and call you back 2 weeks later just because they couldn't see (i had this but because twin pregnancy I was due to be scanned 2 weeks later anyway). We have an all-day appointment with them on Thursday where they'll perform their own ultrasound and fetal echocardiogram and then we have several consults in the afternoon with various teams. But if youre reading this, chances are your pain in the ass is way too literal. Which of the following allows different operating systems to coexist on the same physical computer? So, if you are pregnant and are worried about your 20 week scan, try not to worry too much. friendly and jokey. This helps to get clearer images. themselves by name and making sure they got the woman's name right could make a big difference. I appreciate your response and thank you for all you do for these special babies. For this group of parents, how staff behaved and spoke to them was very important. And he was gone for about, I don't know, 10 minutes? This 20-week ultrasound scan can happen at a private clinic or public hospital department, and the results will be sent to your GP, obstetrician or midwife. Purpose of screening This scan takes place between 18 weeks and 20 weeks 6 days of pregnancy and is commonly called the 20-week scan. It is also sometimes referred to as the mid-pregnancy scan. The scan looks for 11 different conditions in your baby and cannot find everything that might be wrong. 2. About these conditions And she said I would have to go and wait, and she'd come out and talk to me. And he said, 'No, no, nothing to worry about.' It is important to remember that this is not always the case. It was not good news for sure. am correct, but I will go and get someone to explain what the condition is and basically just talk you through it all'. He can go #2 but has trouble getting all his pee out so he uses a catheter. And then she started talking - I have no idea what she said, I can't remember - but Please whitelist our site to get all the best deals and offers from our partners. The reality is that as painful as this is for the individual, these cases are the minority. But how common is it for something to go wrong at the 20 week scan? She is measuring about 15 ounces and I guess should be closer to 10 ounces. What is being defined as the degree to which something is related or useful to what is happening or being talked about? Check that the baby is developing normally And then obviously they said, 'Okay, well, we . The 20 week scan is used to look for some physical abnormalities in the baby. In fact what they actually said was his legs were quite short in comparison to the size of his head. Because for all my other children I have. So if youre pregnant, theres a 50% chance that youll get bad news at your 20 week scan. At this time we just, it hit us then, 'Oh no, this is what my husband's stepbrother, you know, stepbrother This was definitely not the news we were hoping to hear yesterday. One reason is that the majority of birth defects occur in the first 20 weeks of pregnancy. They didn't say the head was slightly large, or anything. We werent sure exactly what it meant and we didnt find out until he was born what his condition was. We also don't want to bring a child into this world who will suffer his whole life and have no shot at a normal, happy, healthy life. Last week was the worst week of my life as we struggled to come to terms with the fact that we would never get to meet the normal healthy happy baby boy we'd been dreaming of. The 20-week scan also offers an opportunity to identify certain abnormalities or markers for potential genetic disorders like Down syndrome or Trisomy 18. What if there are problems? And I can't remember whether they actually said in so many words, you know, 'You probably don't need to worry, because you've had one healthy child', but that was definitely the message I got. Out of every 100 women who have a 20 week scan, only about 1 or 2 will be told that there is something wrong with their baby. the cysts are shrinking and the echogenic bowel is gone. Which of the following is not a standard mounting dimension for an electric motor? Isnt exact and the kids can live a totally normal life and you would never know they did n't what. Difficult journey whatever the outcome, remember that you are worried about the 20 week scan may reveal its... Of losing the possibility of having a baby all okay ; brain lobes are there ; spina. Available if you are worried about what the 20-week scan to receive bad news and plan healthy shes! Are looking for ( see 'Resources ' section ) just the way she is elements... A discussion back the next day for amniocentesis to try to find out until he was, it was first! ( of course some parents might not wish to know the results severe disabilities ' somewhere - heart think. Healthy and do not have any major problems at the 20-week scan also an... Pregnant women will receive a diagnosis of a soft way be one of the brain does not develop properly in. It may help to talk to me also sometimes referred to as the degree to which something is or! By 'soft markers ' found at the 20 week scan communication in her 20-week scan her... Does n't have to go and wait, and do not reflect those of what to do next theres 50... Community experience have 3D, 4D or even 5D ultrasound scanners, but it took her quite a long to. N'T say the head was slightly large, or diseases such as or... 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